CNOC CLINICAL REGISTRY
- The Clinical Registry is a multinational, multicenter, collaborative data resource.
- CNOC and PC4 member sites can begin data entry as soon as their site’s ArborMetrix contract is in place and team members have viewed CNOC’s training webinar and passed the learning quiz. The platform for non-PC4 CNOC members will launch later in 2019.
- The Clinical Registry Manual of Operations, Instructions for Data Entry, Data Dictionary, and training webinar recording can be referenced in the MEMBER LOGIN section of the CNOC website.
- If you have questions, please speak with the CNOC champions at your site or contact CNOC at firstname.lastname@example.org
The Cardiac Neurodevelopmental Outcome Collaborative is a not-for-profit organization established to determine and implement best practices of neurodevelopmental and psychosocial services for individuals with pediatric and congenital heart disease and their families through clinical, quality improvement, and research initiatives.