Patient and Family Committee Members
Beginning in 2018, the Cardiac Neurodevelopmental Outcome Collaborative will include CHD patients, parents, and other family members within the CNOC Steering Committee and Standing Committees. For 2018, approximately 12 patients, parents, or other family members will be invited to join a Standing Committee (two per committee) and two will be invited to join the Steering Committee.
Going forward, nominations for adult CHD patients, parents, and other family members will be requested on an as needed basis. Diversity (gender, race/ethnicity, region of country, age of child) is a consideration for selection. Nominated individuals will be asked to complete a CNOC Committee Member Application.