Overview descriptions of CNOC’s Standing Committees are below. For expanded detail about short- and long-term goals, expectations of committee members and the role of patient/family committee members, click here.
The Communications Committee is responsible for optimizing communication to CNOC members; creating and overseeing content to communicate to the larger heart community distributed through various modalities, including, but not limited to, email, website, social media, and/or listserv. Contact Committee Chair Sarah Kelly PsyD for information about how to participate in committee activities.
The Community Outreach Committee is responsible for serving as a resource for developing and disseminating educational materials regarding the neurodevelopmental care of children with CHD and their families to external stakeholder groups, including, but not limited to, patients, families, primary physicians, policy makers; identifying opportunities to engage diverse stakeholders in activities stemming from CNOC; advocacy relating to issues impacting cardiac neurodevelopmental patients and their families. Contact Committee Chairs Elizabeth Blumenfeld JD and Jessica Cowin MS for information about how to participate in committee activities.
The Database and Implementation Committee is responsible for assuring the quality of the database, modifying the database variables as the data evolves, and facilitating data collection and analyses. Membership consists of CNOC Steering Committee Co-Chairs, Co-Vice Chairs, and Immediate Past Chairs, DCC, NDC, and DAC representatives, and current and immediate past leadership from the Research and Database committees. Contact Committee Chair Andrew Van Bergen MD for information about committee activities.
The Education and Training Committee is responsible for serving as a resource for identifying and disseminating best practice approaches for the neurodevelopmental care for children with CHD and their families; providing education and training to CNOC members, patients and their families over a broad range of topics as they relate to the developmental care of children with complex congenital heart disease; providing ongoing resource support as it relates to using standard measures for neurodevelopmental evaluations and developing and disseminating education and training programs in collaboration with the Membership and/or Communications committees at the direction of the Steering Committee. Contact Committee Chair Laurel Bear MD for information about how to participate in committee activities.
The Program and Meetings Committee is responsible for the Annual Scientific Sessions of the Cardiac Neurodevelopmental Outcome Collaborative, including oversight of site selection, needs assessment, scientific program, faculty invitations, abstract submission, marketing/advertising, exhibitor prospects, fundraising, faculty and attendee support throughout the conference planning process and the actual meeting, presentation awards (e.g., Best of the Best Abstract Award), and analysis of meeting evaluation survey results and development of responsive plan for future meetings. Contact Committee Co-Chairs Brad Marino MD MPP MSCE and Nadine Kasparian PhD for information about how to participate in committee activities.
The Publications Committee is responsible for review and approval of all abstracts, presentations and manuscripts for publication. All reviews of abstracts and presentations will be performed and feedback delivered within 14 days of submission to the Publications Committee. All manuscript reviews will be completed within 30 days of submission to the Publications Committee. Contact Committee Co-Chairs Bea Latal MD MPH and Karen Uzark PNP PhD for information about how to participate in committee activities.
The Quality Improvement Committee is responsible for the review, scope, and prioritization of quality improvement initiatives for CNOC; continuing to implement CNOC QI projects aimed toward improving outpatient cardiology identification and referral of high-risk status for children with CHD; working with the Education and Training and Research Committees to support quality improvement initiatives. Contact Committee Co-Chairs Samantha Butler PhD and Jennifer Cass PhD ABPP for information about how to participate in committee activities.
The Research Committee is responsible for overseeing and promoting the collaborative research agenda of CNOC; taking a multicenter, multidisciplinary approach to better understanding the neurodevelopmental, behavioral, and mental health outcomes of individuals with congenital heart disease; supporting investigator-initiated, patient/family supported, and cross-consortia/network projects that include development of data collection and sharing methodology; review and oversight of all CNOC research proposals including creating, implementing, and maintaining a submission process for research proposals, and facilitating quick review of research proposals, including those part of grant submissions. Contact Committee Chair Cynthia Ortinau MD for information about how to participate in committee activities.